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In memory of Jack Hagelin Sept. 04, '02 - Mar. 27,
'07
* I posted this video June 03, '06 after he was
discharged from the transplant unit.
Jack Passed away peacefully surrounded with Love
at the Children's Hospital of Philadelphia, from
complications from pneumonia and after a 4 and ½
year battle, a diagnosis of NEMO Primary Immune
Deficiency and Ectodermal Displasia, two rare
genetic disorders. His treatment included a Stem
Cell Bone Marrow transplant. In his short 4 and
½ years he helped science gain more knowledge for
this rare genetic condition and through this
knowledge to help other children with this same
condition.
Support NEMO research here http://www.andy.org.mx
www.andy.org.mx
Tags : hittheroadjack hit the road jack |
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